Dissertation - Masters Social Participation, Self-perception, and Social Support in Boys Living with Hemophilia


Aubrey Serah Chiu


Social integration is a critical component of quality of life and understanding how persons with hemophilia interact socially with their peers may inform healthcare providers.

A random sample of 50 boys with hemophilia from The Hospital of Sick Children completed measures of social participation, self-perception, and social support. Participants' parents completed a measure assessing the impact of chronic illness on the family.

The majority of boys reported no significant participation restrictions. Social participation was strongly correlated with self-perception subscales Social Acceptance and Global Self-Worth. The Athletic Competence subscale was strongly correlated for adolescents only. There were strong correlations between social participation and social support from parents, teachers, and classmates and moderate correlations for support from close friends. There was minimal impact on the family and weak correlations between social participation and impact on the family.

Boys with hemophilia have minimal social participation restrictions and are on par with their peers.


Brian Feldman